Thomas Milner's Palliative Care Experience!

Welcome to TomsAnguish which is a dedicated website to our beloved husband, father and grandfather who had been diagnosed with Acute Myeloid Leukemia 6 months prior to ending up firstly on the A. & E. Ward at the Northern General Hospital, Sheffield - 7/1/06 to then dying in less than peaceful circumstances on the MacMillan Palliative Care ward at the Northern General Hospital, Sheffield - 11/1/06.
Thomas Milner's NHS Palliative/End of Life Care Less experience was briefly outlined - Case No. 6 - in the Patients Association Report 2009.

(Case No. 5 - Mrs. Bella Bailey also has a dedicated website and campaign for her www.curethenhs.co.uk The Patients Association are backing a call for a Public Enquiry into the Mid Staffordshire Hospital where Bella Bailey died. Sign the Patients Association petition here: Sign the Patients Association petition by clicking here

Click on the link below to see the Patients Association Report, 2009.
http://www.patients-association.com/DBIMGS/file/Patients not numbers, people not statistics(1).pdf

Within this Tomsanguish website, Thomas Milner's NHS MacMillan Palliative/End of Life Lack of Care experience at the Northern General Hospital, Sheffield will be fully explained.

A month after Thomas died, 16/2/06, the NHS Palliative Care Unit at the Sheffield Northern General Hospital wrote:
'WE WILL BE ABLE TO REFLECT ON YOUR FATHER'S CASE AND HOPEFULLY IMPROVE OUR SERVICE IN THE FUTURE!!! But they failed to answer our concerns about the pain control that was and was NOT administered. We are still waiting!!!

LATEST NEWS LATEST NEWS LATEST NEWS

8/3/10 STH refuse to release requested documents under the Freedom of Information Act.There is no reason for this. The Sheffield Teaching Hospital Trust are saying that divulging the grades of 2 nurses would be a 'breach of confidence and would be unlawful" but that does not make sense as they have already divulged the grades of other staff on the MacMillan Palliative Care Ward, Sheffield.

Details of our evidence will be on site to the left under 'Misuse of Drugs" and 'Our Evidence" shortly! Shame on you Sir Andrew Cash OBE and your 'staff" at Sheffield Teaching NHS Hospital Trust.

1/3/10 The Staff Duty Register that we have, which should list all the names of NHS nurses and and medical staff allowed to give morphine and terminal sedation, does not show the names of the 'nurses" that made entries in the Dangerous Drugs Register,11/1/06. Just who were these 'nurses'. Not being listed on the Staff Duty Register would indicate that they were not qualified to give Morphine! We have asked under a FOIA who were these 'nurses', but the Sheffield Teaching Hospital Foundation Trust just won't tell us. But of course we have seen that the Sheffield Teaching Hospital Trust have altered drug charts and documents and have been less than forthright in this matter and so nothing comes as a surprise to us now, Sir Andrew!

9/2/10 We have now sent a succincte letter to Sir Andrew Cash OBE, Sheffield Teaching Hospital Trust, his colleagues and Members of Parliament. This letter outlines the anomalies found within the Drug Charts and explains fully how the morphine supplied to our Husband, Father and Grandfather was more than halved during the dying process. The Hospital are Stonewalling us again!

5/2/10 - We would like to thank Thomas, Peter, Carol, Violet and Maureen for their help over this matter and leading us to the Truth! STH have passed on to us, mistakenly, the full Dangerous Drug Register which shows the medication given to other patients on the MacMillan Palliative Care Ward, Northern General Hospital, Sheffield!

2/2/10 Morphine signed out, morphine administered the calculations just don't match up!

The 'Misuse of Drugs Regulations 2001" has been contravened. Under the 'Misuse of Drugs Act 1971". Just what documents do we have?

1/2/10 2 'Missing Documents" are requested again under the DPA or FOI.

The 'Staff Signature Register" and clarification of the grades and names of nurses that 'gave" morphine injections. It's been like trying to get blood out of a stone. Come on Sir Andrew Cash OBE only 2 to go!

These documents were requested 31/12/09 and we are still waiting! We had been led to believe that we had a complete set of Medical Notes, having requested them 11/1/06. This contravenes the 'Access to Medical Records Act '.

26/1/10 Drug Charts Destroyed, Alterations to Dangerous Drug Register and Unexplainable Anomalies.
We have now seen 'some" of the Original Medical Notes. Drug Charts and Observation Charts are now disclosed 4 years after Tom's death. Some Drug Charts had been destroyed although the Sheffield Teaching Hospital knew the case was being investigated under the NHS Complaints Procedure.

A serious alteration to the Dangerous Drug Register has been discovered. Mismatching morphine amounts could not be explained. Next Step = It's really up to you Sir Andrew Cash OBE

We have sent an email to the Sheffield Teaching Hospital asking them for Candour and this email can be seen under 'Articles" to the right - " NHS, Lies & Cover Ups'. They are not disclosing 2 important documents that have been repeatedly requested.

25/1/10 Just Can't Get a Straight Answer = NHS Guideline

We have emailed Sir Andrew Cash OBE and his many assistant's to ask them to explain the 'Conflicting Statements" as noted below. Result = Silence as usual. This is standard NHS practice!

14/1/10 Conflicting Statements?

Mr. David Willetts M.P. (Conservative) has now passed us a letter sent to him by Sir Andrew Cash OBE, November 2009. In this letter Sir Andrew says "'I can confirm that when the Healthcare Commission highlighted aspects of Mr. Milner's care which could have been improved, I apologised for these lapses and ensured that the recommendations were acted upon'.
This statement comes in stark contrast to statements issued in the Patients Association Report 2009 and in various press articles. Hilary Scholefield, Chief Nurse at the Sheffield NHS Teaching Hospital Trust issued this statement to the Yorkshire Post 26/8/09 "a review had been carried out by the Trust and the Healthcare Commission about the medication given to Mr. Milner and it was found staff acted appropriately and professionally".
N.B. Regarding the medication, the Healthcare Commission found that the amount of morphine (10mgs.) in the syringe driver was 'Low in the Circumstances'! We NEVER have had an apology!

11/1/10 4th Time of asking to View the Original Medical Records!

It is now exactly 4 years today since Tom died. We have written to Sir Andrew Cash OBE for a 4th time to request to view the original Medical Records held at the STH.

We have been advised that as there are anomalies within some recently disclosed NHS documents in regard to other NHS documents that we have, we MUST examine the originals to see if they have been falsified.

Apparently this is not unusual and we are in contact with other members of the public who have already had their loved ones medical records scientifically examined and they have proved that their medical records HAD been doctored!

7/1/10 Request to view Original Medical Notes

It is exactly 4 years ago today that Tom's NHS 'Terminal Care" began at the Northern General Hospital, Sheffield. We have requested to view all the original Medical Notes held at the Sheffield Teaching Hospital Trust after once again writing to Sir Andrew Cash OBE. Our request has NOT been acknowledged. The Medical Notes we have appear to be different from those that the Hospital are referring to in their correspondence 16/12/09!

18/12/09 Medical Record Entry differs from Hospital's Response

On Tom's penultimate day and just 16 hours prior to death, the lights on the 3 bedded ward were VERY bright! A MacMillan Nurse didn't know how to dim the lights. We fathomed it out - a dimmer switch was outside the ward.

The Palliative Care Consultant wrote 16/2/06 that our only complaint on the evening of the 10th January, 2006 was "the brightness of the lights - an issue that was seen to immediately". An entry into the Medical Records states:"I turned downed the light to their satisfaction".

NOW Sir Andrew writes 16/12/09 - 'You have indicated that you adjusted the lights and I accept that'!

16/12/09 Justifying Mistakes?

3 Months after Dr. Mike Richmond, Medical Director of Sheffield Teaching Hospital Trust telephoned us and said that the Hospital would NOT stand by the times of set up and refill of the morphine syringe driver as listed in Sir Andrew Cash's letter to us, when it was said that we would contact the Press - A document justifying Sir Andrew's list turns up!

This document was NOT included in the complete set of Medical Notes in our possession and does NOT match the times of set up and refill of the morphine syringe driver as noted in the 'Medical Expert's Report" nor in a previous NHS letter. Copies of ALL documents will be on site shortly.

24/11/09 Missing Documents, Lost or Shredded?

We have now requested copies of supposed documents upon which the Hospital has based it's correspondence to us (some of these erroneous NHS Sheffield letters are listed below here). These documents have NOT been supplied. Our email of request can be seen to the right under

5/11/09 Again Still Waiting!

Sir Andrew Cash OBE, Chief Executive, Sheffield NHS Hospital Trust (sth), has sent ANOTHER INCORRECT letter 30/9/09 to us this time! He now says that he cannot answer any of our questions as the matter is with the HEALTHCARE OMBUDSMAN! Where is Sir Andrew getting his information? The matter is NOT with the Healthcare Ombudsman, so come on Sir Andrew let's have some answers!

We have sent ANOTHER letter to Sir Andrew Cash OBE which can be seen to the left under CASE POINTS 'Another Letter to Sir Andrew" asking for some simple answers to some simple questions!!!.

26/10/09 Still Waiting!

1.Sir Andrew Cash OBE, Chief Executive, Sheffield NHS Teaching Hospital Trust (sth), has still NOT apologised for his ERRONEOUS letter - See CASE POINTS 'Letter from Sir Andrew Cash OBE'. This letter was sent to David Willetts M.P. WHAT ARE THEY TRYING TO COVER UP?

2.The office of our UKIP-MEP Nigel Farage has still NOT RECEIVED a reply to their letter - See CASE POINTS 'UKIP-MEP Letter to NHS'. Three simple questions were asked about care and medication!

3.The Leeds based NHS 'Medical Expert" who invoiced us £2165.83 for her ERRONEOUS Medical Report, has NOT contacted us although we have tried to contact her. Our UKIP-MEP says she must sue for payment or concede that her writings were INCORRECT. HER SILENCE SEEMS TO DENOTE THE LATTER.

8/10/09 The Marie Curie Palliative Care Institute Liverpool has kindly contacted us:

'We believe a good death in our society should be the norm not the exception. I realise that your experience is of a bad death and that there are no words or actions that can change your situation, however your views on the LCP and how we can strive to enable care in the last hours and days of life to be of a high standard for all, would be much appreciated'.

21/9/09 We receive, belatedly, a letter written by Sir Andrew Cash OBE to our M.P. David Willetts:

See 'CASE POINTS" - 'Letter from Sir Andrew Cash OBE ', for the Sheffield NHS Teaching Hospital Trust's latest mistake.
Sir Andrew get's 'confused" and makes a 'gaffe" regarding Tom's Palliative Care Pain Control and End of Life Medication!
WE KNOW WHEN AND WHAT PAIN RELIEF WAS GIVEN, WE HAVE THE MEDICAL NOTES!

...........

A debate into Palliative Care and End of Life Care has now been opened with the publication of the Patients Association Report 27/8/09. Click here to read Report: http://www.patients-association.com/DBIMGS/file/Patients not numbers, people not statistics(1).pdf


Some eminent NHS Professors and Doctors have 'stuck their heads above the parapet" by saying in the Daily Telegraph - 3/9/09 -'NHS Palliative Care/End of Life Care and Palliative Care medicine is in crisis'. Click here to read Telegraph article:
http://www.telegraph.co.uk/health/healthnews/6127514/Sentenced-to-death-on-the-NHS.html

However the BBC reported in May 2005 that Sheffield University research had found that the 'Elderly are being denied a dignified death on NHS Palliative Care Wards'. Click here to read BBC article:
http://news.bbc.co.uk/2/hi/health/4575641.stm


LATEST NEWS ABOUT THE DEBATE INTO PALLIATIVE CARE AND END OF LIFE CARE

17/10/09, Daily Telegraph - Liverpool Care Pathway (LCP) developers at the Marie Curie Centre defend this method for care in the treatment of the dying patient. They said it is not the LCP that is at fault BUT the Medical Staff who need mandatory training! On the same day, the Government Cancer Tsar steps to the fore saying training of medical staff working on NHS Palliative Care and End of Life Care wards should have mandatory training! Was this just to try to make the NHS/Government look as though they are doing something about the Crisis and Chaos in Palliative Care and End of Life Care?

We thing the whole of NHS strategy is in Crisis and Chaos not just Palliative Care and End of Life Care.

The NHS is the 'National Health Secrets" service, being manned by a plethora of managers and administrators who spend NHS time and NHS expenditure dreaming up efficient sounding titles for themselves. These NHS employees waste time and money to come up with 'new NHS iniatives" and think up 'new NHS healthcare strategies and programmes" that justify their newly created jobs!

At the same time they spend NHS time and NHS expenditure discussing how to cut costs in providing drugs or treatment to the ill or dying.

Blacklisted, suspended or damned if you dare raise your head above the parapet.

Corruption, lies and deceit await, if like us, you dare to complain about a service that is being paid for by me, you and the rest of the UK public.

Regarding Tom's Sheffield Palliative Care LESS experience, 4/9/09 Ms. Christine Beasley, the Chief Nursing Officer and Government spokesperson for the Department of Health, wrote to us saying 'I am sorry that your father did not receive an appropriate level of care at Sheffield's Northern General Hospital'.

At the same time Ms. Hilary Scholefield, Chief Nurse at the Sheffield Teaching Hospital Trust was saying to the press regarding the Palliative Care/End of Life strategy afforded to Tom 'care was appropriate'.

They are not singing from the same hymn sheet. They must be suffering from confusion.

Farce! The NHS should carry a Health Warning. It's got a Medical Condition. It's Elderly. It's got a Terminal Illness.

God Help us All and Shame on Them!

THE PATIENTS ASSOCIATION AND THE OFFICE OF OUR UKIP-MEP NIGEL FARAGE HAVE HELPED US WITH THIS NHS COMPLAINT AND CONTINUE TO OFFER SUPPORT OVER THIS NHS SCANDAL. THANKS SO MUCH TO THEM.

Selected Items

	Poor NHS Standards Cause Suffering LATEST NEWS LATEST NEWS LATEST NEWSThe Archbishop Vincent Nichols Leader of the Roman Catholic Church in England and Wales speaks out about 'La......
	NHS and Government Contacted 10/7/09 This letter was sent to Gordon Brown M.P., Dept. of Health lots of M.P.'s, other interested parties and latterly, the Doctors involved in the case. ......
	Email Apology from Christine Beasley, Chief Nursing Officer CHRISTINE BEASLEY, CHIEF NURSING OFFICER - CNO, APOLOGISES VIA EMAIL! Personal‏ From: Christine.Beasley@dh.gsi.gov.uk You may not know t......
	NHS/Government Contacted AGAIN Our Reply letter to Sir Andrew Cash OBE is at 'Reply Letter to Sir Andrew Cash OBE'. Our reply 22/9/09 to Sir Andrew Cash OBE, Chief Executive of t......
	Our Reply to Andrew Cash and NHS 22/9/09 Dear Ladies and Gentlemen, Re: THOMAS MILNER Case No. 6 PATIENTS ASSOCIATION REPORT 27/8/09 www.tomsanguish.com I wrote to you all, 30/6/09, a......
	Another Letter to Sir Andrew Cash OBE 26/10/09 Dear Sir Andrew, I remain perplexed in view of your letter dated 30/9/09 notwithstanding your letter dated 14/8/09 addressed to my M.P. David Wille......
	Palliative Care under Debate The Patients Association Report 27/8/09 has opened up a wide debate about Palliative Care and End of Life Care. First to comment were the eminent ......
	Thomas Milner's Palliative Nursing Care Thomas Milner our husband, father, and grandfather spent his last 5 days being pushed from pillar to post and finally ended up for the last 40 hours o......
	Robbie Powell "Why were lying GPs allowed to cover up our son's death"? Asks Will Powell. Click here to sign the 'Duty of Candour - Robbie's Law' to make the NHS......
	Neil Askew - Meningitis Not Recognised by NHS Hospital Neil Askew aged 11 years and an only child, died due to an NHS Hospital Blunder. Then 'evidence was withheld' during 3 enquiries into a complaint int......
	Lilibeth Ooms 45 years old - NHS Error? You can read the full story of how Lilibeth Ooms died due to a NHS Hospital error - Her Widower has created a dedicated website! Lilibeth Ooms died......
	Eileen Cubells, Misdiagnosis, Wrong Treatment, Died! Eileen Cubells was a beautiful, 63 year old lady when she was misdiagnosed at the Wrightington, Wigan and Leigh NHS Foundation Trust Hospital. ......
	Gosport War Memorial Hospital Scandal Patients who were NOT terminally ill or dying at Gosport War Memorial Hospital were 'put to sleep' being started on syringe drivers with very high loa......
	War Veteran died due to NHS Failings War Veteran, John Farrow was admitted to the Airedale NHS Trust Hospital with pains in his joints, his GP expected him to come home. John was put......
	NHS Complaint Procedure The NHS Complaints Procedure is bogus. The Office of Nigel Farage UKIP-MEP says:"there is a plethora of advisory bodies set up simply to waste your t......
	How to Complain to the NHS The NHS employs thousands of staff to man the offices of it various stages of the NHS Complaints procedure. To get justice is difficult when the NHS h......
	'Independant' Medical Experts The NHS Complaints procedure can mean that you need an 'Independant' Medical Expert to look over your case. The NHS Complaints procedure will only ......
	NHS - Recommended Books Recommended books. Read about corruption and deceit in our NHS and Labour Government! ....................................................... 'T......
	Excerpt from 'Fleeced' by David Craig 'Fleeced'!: How we've been betrayed by the politicians, bureaucrats and bankers, and how much they've cost us. Click on the 'File Attachment' belo......
	Patients Association - HealthCare Charity The Patients Association was set up more than 40 years ago to promote the voice of patients in healthcare. It is a registered charity based in North L......
	NHS Sends Staff for Private Treatment Excerpt from the Patients Association Weekly Newsletter, 23/10/09 Click here if you wish to receive the Patients Assocition Weekly Newsletter 6......
	4 out of 10 Patients Receive Sub-Standard Care NCEPOD report reveals shocking levels of poor service and care for hospital patients The National Confidential Enquiry into Patient Outcome and Death ......
	Basildon University Hospital Fails Patients Maidstone. Tunbridge Wells. Stoke Mandeville. Mid staffordshire. Now Basildon. Will this be described as another one off? Yet again we find patients b......
	End of Life Care A General summary of accepted End of Life Care plan's and strategies will be here soon. Terminal Sedation is being debated at the moment. Some patie......